Submit a blog to our listing.
Know a great blog that shares your story of life with a family member with Down syndrome? Post a comment telling us about it. We are interested in blogs where at least half the postings relate to this subject, or where you can supply an RSS feed for the relevant posts.
Click here to jump to the commenting box at the bottom of the page.
Blogs are added once a week. There will sometimes be delays of more than a week. Thanks for your patience.
November 29th, 2009 at 7:58 pm
My blog is about our family’s journey…Most of the postings are about our beautiful daughter Emily who has down syndrome and how this has changed our family.
November 20th, 2009 at 9:10 pm
My blog site is really a way for me to work through my thoughts on having a baby with Downsyndrome. Through various situations, and observations, Im able to work through my faith, and my life with a child with DS. My blog is about Embracing the Journey:) I pray that through my honesty, and faith that someone will say, Im not alone, others feel the same way:) Thanks
October 11th, 2009 at 2:49 pm
I would love my blog to be added. We have been blessed with 7 children and 2 of our girls have Down syndrome. We adopted our daughter from Ukraine last October and she is 5 months older than our other daughter. Our blog is all about “Our Version of Normal” that encompasses Down syndrome, autism, ADHD and adoption.
October 10th, 2009 at 1:09 am
Please add me to your blog list too. Thanks
September 20th, 2009 at 7:46 am
Submitting my blog.
September 2nd, 2009 at 11:35 pm
We would love to be added!
August 17th, 2009 at 9:00 pm
Thank-you for this priceless support website. I would love to share my family’s journey with out precious son, Jonathan. He was born on March 4, 2009 with Down syndrome and transient leukemia, which ultimately required chemotherapy. He has had quite an amazing life and has brought me closer to God with every passing day. I love him so much – he is an incredible blessing.
August 9th, 2009 at 1:06 pm
This is my blog which i started two months ago. I write about everything but half has to do about my life with my baby who was diagnosed with Ds.
August 9th, 2009 at 6:52 am
Please add my blog to your list- thanks for making all of these connection. I have a daughter, age 9, who was born with Down Syndrome and she has changed my life. You have a wonderful book which helps so many people.
August 5th, 2009 at 1:39 pm
Though my blog is intended to keep those who are interested updated in the happenings of both of my children, I do post more about my little fella with the extra chromosome with the hope that if someone else is experiencing the same thing, they will glean something from our blog. Plus, I love posting anything that celebrates individuals with Down syndrome!
August 4th, 2009 at 9:56 pm
I would love to share my blog with others! Thanks for adding my blog, Learning As I Go, to your list!
July 7th, 2009 at 12:39 pm
would love our blog to be added! thanks!
July 7th, 2009 at 8:44 am
would love to share out story on here as well. we have a 16 month old, henry, who is amazing in every way. i started my blog to keep in touch with family/friends back “home,” but have met so many people through it. nothing makes me feel better than when someone reads about a particular moment in henry’s life, and then tells me, “after reading your post, i’ve realized i’m not alone.” there are so many twist and turns with raising a child with down syndrome that it’s nice to be able to reach out to others and vice versa through words. love the book gifts and can’t wait for the second!
July 5th, 2009 at 8:36 pm
I created this blog for Colin as a therapeutic way for me to share Colin’s ups and downs with friends and family. Colin was diagnosed with Down Syndrome shortly after birth and is a little over 2 months old now. In the short time since he has been on Earth, he has touched our lives and has taught us so many things including unconditional love and patience. For me one of the things I sought out in the beginning was other people who “understood” the boat my family was in…and now, I would love to share our story with others….because Colin is truly our blessing.
May 12th, 2009 at 3:06 pm
The last six years I have been very priviledged to photograph the most beautiful children with a little extra. This blog will be my “project 365″ where I will post daily or every other day my favorite pictures.
Please feel free to add this blog to your list of personal blogs – thank you so much in advance!
May 11th, 2009 at 12:51 pm
I have 3 year old identical twins with Down Syndrome and they have been such a blessing to me and my family they have encouraged me to start up a support group in my area and through my searching for local things to do I stumbled upon my local Arc group and I have recently become their new Executive Director. My first mission is to get your book distributed to new parents in the area. I wished I would have had someone just hand me this book when I needed it the most. Thank you so much for such a wonderful book.
May 10th, 2009 at 7:33 am
THere is one that I do for my parents of children with special needs. I did a couple of videos to help them with some training. I also put lots of resources for those special parents. Feel free to include if it fits.
April 23rd, 2009 at 8:04 am
I am a mom to 2 children. I started my blog as a way to share our lives and the joy we have in celebrating our life with a child who was born with Down syndrome. I love sharing posts and pictures of the life we have be given!
February 16th, 2009 at 3:00 pm
Our son Charlie is 3 years old. He has Down Syndrome. We post about our journey with Charlie at http://charlies47.blogspot.com. I think it would fit with your listing here.
Kim
February 15th, 2009 at 6:16 am
A poem for Maisie
I will never forget the day after your birth,
When doctors muttered the words that brought me crashing down to earth.
Down Syndrome Down Syndrome was all i could hear,
And suddenly my body became gripped with fear.
How would i cope?
What would i do?
For most other babies were much different from you.
As i watch you learn to do things that they said you would never do,
I feel my heart grow bigger as your determination shines through,
You have changed my life completely,
And taught me as you grow,
That just because your different,
I love you more than you know.
February 4th, 2009 at 5:38 pm
We just received a prenatal diagnosis for Down syndrome for our son that is due in May. I’m not sure if you only post blogs that actually have a baby or child with DS but we are looking forward to meeting our son and are preparing for the challenges that may come with him.
January 19th, 2009 at 11:10 pm
I have three little ones. My youngest is 8 months old and has Down syndrome. I just started a blog about our life and wanted to share it. Thanks for Gifts, I read it cover to cover just after Bryce was born.
January 9th, 2009 at 2:07 pm
My daughter Emily is 2 1/2 months and has Down Syndrome. I am glad I found this! Thanks!
January 8th, 2009 at 4:17 pm
This is an amazing site for an amazing book! I read this book a few days after my son Nathan was born and it totally rocked my world. I’m afraid I’m a bit snobbish now about my son…feeling like I’m better than everyone else who only has ‘typical’ children! I feel priveledge, honored and grateful…oh so grateful for Nate’s life and his place in my family. I wouldn’t have him any other way.
December 2nd, 2008 at 10:47 pm
My daughter with DS was born 2 years ago and has been the most amazing inspiration to everyone. I am an advocate for our local hopsital/clinic. I got the axillary to purchase the book GIFTS for families with the prenatal and postnatal diagnosis of DS–yeah! Thanks to all of the mommy’s that have shared and inspired us all.
October 24th, 2008 at 4:52 pm
Love the blog and would love to have you add my blog to yours
Debra
October 24th, 2008 at 3:17 pm
Would love to share our blog about our family, and in particular, our son Charlie who is now one!
…you can find it at:
http://www.blessingsandglory.wordpress.com
October 20th, 2008 at 10:25 pm
I would love to have you add my blog, MeAnderings, to your blog roll.
I think sharing our stories with others is important!
The website looks great. Can’t wait to see Gifts Volume II!
October 18th, 2008 at 6:27 pm
A big Welcome to our new blogs:
Faith at Down Right Faith
The Keirnan Clan and five year old Rachel……Happy Belated Birthday Rachel!!!
Kristy and all the members at Mosaic Moments
Little Joe ~~you truly are an inspiration!!!
Thank you for sharing your journey’s with us…….
October 18th, 2008 at 2:56 pm
We would love to add our website to your blog listing. My daughter Sydney entered our lives 15 months ago and we have been so blessed by her and the others who have joined our lives. The book Gifts was a Gift to us shortly after she was born. I read it with Tears in my eyes, tears of Joy.
October 18th, 2008 at 1:25 pm
I just found this site and love it. I have really enjoyed looking at the blogs. You can add our blog to your list too. Thanks for giving us this site to connect with others traveling the same road.
October 18th, 2008 at 9:35 am
This month in Mosaic Moments I am doing 31 for 21 and featuring an inspirational story each day about an individual with mosaic Down syndrome or Down syndrome. I invite everyone to visit and enjoy the beautiful photos, videos and stories about these wonderful individuals!
Kristy
http://www.mosaicmoments.today.com
October 17th, 2008 at 2:47 pm
OK – it’s not a blog, it’s a youtube, but the channel will have other postings. Inspiring story about a child with mosaic down syndrome and a second rare genetic condition (Tetrasomy 8p) – a never-before-reported combination:
http://www.youtube.com/watch?v=zSfeiauegV4
October 17th, 2008 at 11:43 am
A big Welcome to our new blogs:
The Seal Bark ~ The home of Miss Morgan 6 years old and her family
Little Wonders ~ The home of Miss Zoey Grace
Thank you for sharing your journey’s with us…….
October 16th, 2008 at 9:34 am
We would like to be added to your blogroll. I am a mother of six –3 boys and 3 girls. My 6 year old daughter, Morgan, was born with Down syndrome.
October 16th, 2008 at 8:24 am
I didn’t realize this site was up!! Where have I been? LOL Thanks for all that you are doing and I give “Gifts” to new parents and it gives me such peace to know that it will help them on their journey.
October 15th, 2008 at 12:52 pm
A number of people had found my blog and mentioned they found me through the “Gifts” site.I thought they were referring to the link I have to the book on my site but lo and behold …no this is what they were talking about!Someone had obviously had a link on their entry and one thing or another led them to me.I had no idea!I so wish I had known about this site.At a time when Zoey was riddled with one medical condition after another,finding others traveling the same road, would have meant the world to me.Well,I know your here now and I would be honored if you could add Zoey and our family to this incredible site.My hope has always been that one day a new mom,a new family, would find their way to us and we could do something,say something or just lend an ear to what feels to them, to be such an overwhelming time of uncertainty.Thanks again for what you do here.There is no price tag to this … it simply is a gift.
September 16th, 2008 at 3:24 pm
Our life has been full of miracles ever since Matthew arrived. Doctors originally thought he may not even live to be born due to severe heart defects, among other problems. If he survived pregnancy, we were told, he would probably only live a few hours, maybe a few days. We took him home on Hospice. But, instead of getting sick and weak, he got stronger. By 6 months of age, his heart miraculously had grown and developed enough for surgery, which was done when he was 8 months old. We just celebrated his first birthday – a day we never thought we’d see. He is a healthy, happy, beautiful boy who fills our home with joy and laughter. He has been such an incredible blessing to our family!
His success story, along with our journey through two surgeries, is on our blog at babymatthew.wordpress.com. We feel like his story is meant to be shared, and would be honored if it were included on your website.
September 6th, 2008 at 11:01 am
I would be honored if my blog could be added to this list. My name is Laurie and I have a 2 month old son, Dylan, who was diagnosed with Down syndrome shortly after his birth. He will be undergoing open heart surgery in October. I received the book “Gifts” about a week after his birth and have been enjoying it ever since.
Dylan is an absolute blessing!
Thank you,
Laurie
September 3rd, 2008 at 9:37 pm
I’m the mother of 6 children, my youngest of whom is 8 weeks old and has DS. I started my blog as a way to keep family and friends updated about him, as he had surgery the day after he was born and spent 2 weeks in the NICU. The blog has since then become a form of therapy for me, and has sort of taken on a life of its own. I’d love to see it added to your blog list here: http://finniansjourney.blogspot.com
Thank you!
August 23rd, 2008 at 4:11 pm
You can add us to your blogroll. My blog is slightly different than most in that my daughter Ricki is a teen (almost 14).
August 14th, 2008 at 12:39 am
hi, i just started this blog a couple of months ago and would like to share it with you and others who are interested.
it’s all about our life with our daughter who is 5 months today.
the blog is called:
ever forward, Maya
http://evrfwd.blogspot.com/
August 12th, 2008 at 8:44 am
I can’t tell you how much finding this website has meant to me!! The photo montages and personal blogs have been fuel to my soul and inspirational! I
recently started a blog about raising my son Reid (19 months) with Down syndrome and his big brother Luke…I would love to have it added! Thanks!
August 8th, 2008 at 4:57 pm
I didn’t even know about this area until someone posted on my blog asking why I wasn’t here LOL. I have 3 children with Ds (5,2.5,and almost 2), 2 of them adopted recently from Ukraine, and another typical little guy too. re still waiting to come home. My oldest, Emma, just went through a “miracle surgery” as we were told it shouldn’t be performed and now she is home just 5 days after this high risk open heart surgery. My blog is about raising my kids, most of whom have Ds, and advocating for those around the world that are still waiting to find “home”.
August 8th, 2008 at 2:13 am
Hi Johnna,
I hate to be a pain but due to a number of things, my blog has changed. It used to be “The Extra Gene”, and now it’s
http://www.astoryofdownsyndrome.blogspot.com
It’s all about DS. I would love it if you could add the new one, and take off the old one, pretty please with sugar on top?
Thank You So Much!!
August 3rd, 2008 at 9:52 pm
A belated welcome to our new blogs
Addison Grace Taylor
Wintertree Design
July 21st, 2008 at 9:04 pm
I’m a proud mom of two children. My youngest, Nathan, has Down syndrome. He’s amazing and I love to let other parents know what he’s up to and offer hope. Not every day is easy, so it’s so good to find a community of bloggers who share the same struggles. I’d love to join the “club.”
July 20th, 2008 at 9:43 pm
This is our way of keeping family and friends updated on Addison’s progress.
July 14th, 2008 at 8:38 pm
Welcome new blogs:
My Cool Family
Elliot’s Nest
I’m Down with Down’s
Rustin’s Rodeo Roundup
The Extra Gene
And, to our listing of links: 5 Minutes for Special Needs
July 14th, 2008 at 8:02 pm
This is a brand new site that includes 3 parents who have kids with Ds blogging. It is a fantastic resource.
July 5th, 2008 at 2:31 pm
I have a daughter with DS. My blog is devoted to spreading Down syndrome awareness in a positive way.
http://www.the-extra-gene.blogspot.com
Thank you
Nikki, mommy to Madison
July 3rd, 2008 at 8:32 am
add us too!
June 25th, 2008 at 8:53 pm
We’re newcomers, but I’d love for more people to see our blog. One of my sisters had a baby with Down syndrome about 5 years ago. Another sister just found out her 6 month old has down syndrome, and I found out my boy, due in October, has it, too. So, we started a joint blog.
June 25th, 2008 at 10:41 am
I just started a blog and I would love to have it added. I have a 3 year old son with Down syndrome.
June 22nd, 2008 at 3:26 pm
I am looking forward to reading this book. I have no idea how to get ahold of it. I’d love to talk to someone who’s experienced what I am. I’m 23 and my youngest son of three which is three yrs old has DS. I’m very visually impaired and being so, no one really wants much to do with us. I’d love for someone to contact me. Thanks for putting such a helpful site out here for people like me who are whoefully unconnected.
June 20th, 2008 at 1:53 pm
It’s not about my 4th with DS, it’s about the whole family, and everyone’s life!
June 18th, 2008 at 1:21 pm
Jennifer, your blog is now in rotation on our listing of Recent Posts to Personal Blogs.
We’d love to receive your submission to Gifts II. The deadline has been extended to September 1st. Directions for submitting your writing are at the Gifts II page on our website.
The only photos being looked for right now are for the cover. Woodbine House, our publisher, is sponsoring an exciting cover photo contest. Photo contest entry information is here on the Woodbine House site.
June 18th, 2008 at 12:10 pm
I just started a blog about my son Joaquin who was diagnosed at 3 mos old with DS. I would love to have my blog listed on your site and I am definately interested in submitting some photos and an entry for Gifts II. Please let me know how I can do this. Thank you!!!
Jennifer Varanini Sanchez
http://www.trisacharm.blogspot.com
June 12th, 2008 at 2:10 pm
I would be very happy if you’d add my blog to your list! Love this site! Love Gifts!
May 19th, 2008 at 3:16 pm
Thanks for stopping by!
We’ve added the Stumbo Family Picture Page and Sunflower Mom to our listing of recent posts to personal blogs.
May 19th, 2008 at 10:43 am
Stumbo Family Picture Page. The blessings of having two daughters…of being a mom. How Nichole’s extra chromosome has impacted the lives of so many people, but most of all, my own. She inspires love.
May 19th, 2008 at 10:09 am
Love the new website, it is packed with info! I spent atleast an hour clicking on blog links this morning, so I thought I’d share ours to be added to the roll.
Oh, I am a contributer to the first Gifts book, chapter 17.
Thanks!
May 18th, 2008 at 10:20 pm
“Lily’s Life is Great” takes on a different twist. Check it out.
May 15th, 2008 at 11:49 pm
thanks, Jessica, that’s so cool for me to get a compliment from one of the Gifts authors. I’m adding your blog to the Gifts Authors page as well.
May 15th, 2008 at 9:01 pm
Love the new website design – fabulous! Please feel free to add my blog to your personal blogs list. Thanks!
May 14th, 2008 at 10:23 pm
Thanks Michelle Ray! And since your comment includes a link to your blog, and your blog is the kind we carry on our Personal Blogs page, your recent posts will begin appearing on our page from your RSS feed.
May 14th, 2008 at 9:43 pm
Love the new website!