Personal Blogs
In the book Gifts mothers shared personal stories about how a child with Down syndrome enriches their lives. Because of the value of stories of families, here are some excerpts of recent posts to personal blogs.
If you know of a blog you believe would fit into this listing, you may submit it here.
Archie's Room » About Simple Pleasures
Last winter, when the days were short and the nights were long, I told myself again and again how wonderful the summer would be, how’d we’d have time and energy plenty to all sorts of fun things.
Apparently I had no idea what I was talking about last winter.
So far summer has unraveled me.
For the most part, Archie, Kit ...
[Link]Little Miss Magic » It's not Disney, but we had a blast anyway!
We needed a vacation. Okay, we wanted a vacation. You see, I have a wandering soul and can't seem to go for more than a few months without a get away. In the past two years, our kids have been to the Grand Canyon and boating on Lake Powell, Skiing in Utah with my sister and ... [Link]
Elliott's Nest » Num Num Num...
Here are both kids pretending to eat like Cookie Monster. Aidan has also been pretending to drink like Cookie Monster. It's very cute as long as the cup is empty! [Link]
Pinwheels » Boston, anyone?
This weekend I’ll be in Boston for the 36th Annual National Down Syndrome Congress Convention, at the Seaport World Trade Center–this year’s theme is “We’re More Alike Than Different.”
Friday afternoon, I’ll be hosting a Sharing Session called, “Mothers Only, Birth to 2 Years” at the SWTC, Harbor Level, Waterfront Ballroom II, from 3:30-5 pm. Then Saturday, Kathy Soper and I ...
[Link]All 4 My Gals » Old Friends are the Best Friends!
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Conny Wenk News Blog » Claudius
I love taking pictures of little girls as they love love love to pose. But this handsome 7-year-old kiddo just loved taking pics - and he was quite the professional little poser as well! :) What a fun shooting!
[Link]
RHETT'S JOURNEY » Andy's Art.......
Okay so here's the deal. Since we are going the whole month of July without insurance, we need help. We are supposed to go up to PCMC tomorrow for Rhett's post op check up with the surgeon, and they already want to know what amount we will be able to pay up front. I told them 5.00 and I thought ... [Link]
Life With My Special Ks » Q&A #12 - Surgery questions part 2
Are they still giving her breathing treatments?
Nope, she actually only ended up having 1 or 2 treatments. Since then we've been making good use of the Spirometer... she and I both have one and we've been having inhaling contests! haha
So my question is after Keegan is in Kindergarden, are you going to become a nurse since your so well versed ... [Link]
I Never Thought.... » Size Matters
Last week I had taken Evan to the endocrinologist for a recheck. He had (very slightly) high TSH levels back in December, so they wanted to check him again after he turned two. The doctor just called with the lab results...normal levels! So we've dodged that bullet, at least until next year. Doc says kids with DS (well, he says ... [Link]
Big Dawg Tales » The Hoosier Pundit Calls me out!
Scott Fluhr over at The Hoosier Pundit has decided to call me out in his post today. I have been very upfront in my support of Greg Zeller for Indiana Attorney General even though I lean somewhat left. Not long ago I asked a question on another great blog Advance Indiana about the issue of outside council and settlements with ... [Link]
All 4 My Gals » Esther Lesson 8 ~ Day Two
By Thomas KlockDAY TWO: A Desperate Plea
Please carefully read Esther 8:4-6 and answer the following questions.4. Then the king extended the gold scepter to Esther and she arose and stood before him.
5. "If it pleases the king," she said, "and if he regards me with favor and thinks it the right thing to do, and if he is pleased with ... [Link]
All 4 My Gals » Creature Discomforts
Check out this cool campaign to change people's attitudes about disability.
http://www.creaturediscomforts.org/
Here is an example of their work. I sure wish we were viewing these in the States!
[Link]
All 4 My Gals » Fireworks
Especially for AZ and Stella who didn't get to participate in the festivities this year. :) [Link]
RAISING JOEY » NDSC convention roll call!
I’m heading up to Boston on Thursday for the National Down Syndrome Congress’s annual convention! Who else is going?!?!
Unfortunatly, Joey is not going… I’m doing a mom’s weekend with a couple other moms from the CDSC. I need a break and what better time to take one!
I’m so excited, so many workshops to go to, so many of my ...
[Link]RAISING JOEY » July 4th BBQ
Things have been a bit crazy again. Joey goes from feeling like a million dollars to completely and totally crumby. I feel so bad! Anyways, here are some pictures from the BBQ we had on Friday!
Leah had a couple new foods at the BBQ, the first one… corn on the cob!
Joey’s best buddy, Corey! Isn’t he so handsome?! ...
[Link]Chanelle and Tristan » Purpose Driven life
Since I haven't gotten my book back from the neighbor yet I signed up for a daily newsletter from Purpose Driven Life. It is a daily devotional. Todays letter reminded me of something that I need to focus on better. Patience. Here is todays
Patience with Imperfection
by Jon Walker
Be completely humble and gentle; be patient, bearing with one another in love. ... [Link]
Sheena Time » Getting to know baby Bro
Sheena is rather pensive of her baby brother at the moment. She tries to avoid cuddling him, but at the same time is curious at a distance. This photo took some effort, as Sheena would jump off the couch rather than sit and pose next to Roy. At the same time, Sheena can say Roy very well, "Roy oy oy", ... [Link]
Sheena Time » Our Walk
Sheena's walking is considerably less stiff and she is getting more adventurous with her travels. Sheena started toddling 6 months ago when she turned 2, and now the toddle has gone. She still needs more practice with going up and down hills, but she manages rough terrain if the surface is fairly flat. Yesterday she went to investigate ... [Link]
All 4 My Gals » Tights In the Summer?
That has been Emery's desire for the past few days. At last this morning I allowed her this strange luxury. She was giddy as she slid her legs into them. "Mom why can't I wear flip flops with tights?" And we followed with the discussion about how fashion changes with each season and how flip flops and tights ... [Link]
Banana Migraine » Bug Collecting
Dominic got a bug box as a gift from our friends M and C. He loves to explore, and is now also armed with a sketchbook and bug book from Grandma so he can go on the ultimate bug expedition. I just love watching him on his quests.
[Link]
Gabi's World » Remember When... "I Lost To The Beach"
You remember the post when "I Lost To The Beach?" Well, here is the beach that I lost to:
I thought the low muscle tone that allowed my daughter to get into some weird positions was a thing of the past, but here she is playing in the sand while sitting in a split.
Look at that TAN!
... [Link]
Three's a Charm » At Home with Down Syndrome
This article is an absolute must read.
At Home With Down Syndrome
If you get a few moments to take a look, please do. It is incredible and beautifully written. [Link]
Three's a Charm » Back from Philly
We're back from Philadelphia and still recuperating from the 10 day trip.
First of all a HUGE thank you to my mom and dad for their support. My mom came with us to Philly for the first 7 days to watch Mateo and Joaquin while we took the course. This was no easy feat but somehow she managed to do it ... [Link]
Three Weddings » Atlantoaxial Instability
Children and adults with Down syndrome have increased risk of orthopedic problems because of their low muscle tone and loose ligaments. One of these problems is Atlantoaxial Instability or AAI. According to Babies with Down Syndrome; A New Parents’ Guide (2nd edition), edited by Karen Stray-Gundersen (Woodbine House 1995), this condition occurs in about 10 percent of individuals with Down ... [Link]
Yeah, but Houdini didn't have these hips. » Tomorrow's Gonna Suck
I'm taking a class through the Gotham Writers Workshop this summer, and the course went live today. That means that midnight was the first time I could log on and view course materials, including workshop schedules and critique due dates.
At 11:48 pm, I got a "Gotham Class Late Notice" informing me that I'd been chosen to go first and my ... [Link]
Dream Big » Somebody is always sick!!!
Yesterday was our 6th wedding anniversary. We lucked out and my sister, with some help from grandma and grandpa, watched the kids and we were able to get a date night! We ate a nice (and way too fattening) dinner and even went to a movie. Grandpa was in charge of bedtime and he rocked Chelsea to sleep with no ... [Link]
Stumbo Family Picture Page » Beautiful Wyoming
Every summer Andy takes the youth from our church on a trip.The plan was to take the kids to Montana, but because of the weather, we ended up going to Wyoming.It was beautiful! 
I love this picture. The gate is so inviting. Come. Enjoy. Rest. Breathe.Beauty. Peace. Calm. Breeze.
Lost Lake. we took a steep hike to get there.
... [Link]
All 4 My Gals » Fourth of July Parade
We participated in the Lexington parade with our Down syndrome association. As you can imagine it was a lot of fun! We passed out candy and Buddy Walk brochures.
The best PR....Tarenne making the loser sign on her forehead to the audience. Such a sweet girl! ha ha!
[Link]
2 Pirates and a Princess » Just some random musings:
This morning, on the way to take Micah to the bus, I noticed that, every so often there was a loaf of french bread on the road. Apparently a bakery truck did not have everything locked in tight. But it looked like Manna from Heaven - it's raining bread!
I made a shiva* call tonight (see below for definition/explanation). One of ... [Link]
All 4 My Gals » Tag I'm It! And I haven't played in a long time!
My friend Karen at Chewymom tagged me.
1. WHAT DID YOU DO 10 YEARS AGO?
10 years ago we moved from Pittsburgh to Rochester, NY for Joe's job with Nike just before I gave birth to Darrah. It made it an easy decision for me to become a stay at home Mom. That year in Rochester was one of the best of ... [Link]
Archie's Room » Pay it Forward
Before bed each night, my kids play with my dog. Sometimes Jinx chases them down the hall one way, and then the kids chase her back the other way, dog barking, kids squealing, and everyone having a fine time. Jinx may roughhouse with Archie, Kit and Jack, but it seems to me that she takes great care to be only gentle ...
[Link]Elliot’s Expeditions » Now this...
Yes, this, made my heart happy. I cannot wait to receive my copy.
[Link]
Life With My Special Ks » Kennedy update - Monday night
Kennedy had a pretty good day today, which I was happy about because she had a HORRIBLE night. She tossed and turned all night long and we finally gave her Valium at 6am and then she slept hard until I had to wake her up for PT at 10:00.
She did pretty good at PT, she didn't really want to stand ... [Link]
Bits of Betsy » You Can Call Me Bill...
So, today I felt like I had been thrust into a time machine, and totally flung backward nearly a year.
Normally, that would be a good thing - who wouldn't welcome the chance to re-live a year over again?
Admittedly, though, this news has come with a heavy sigh, a resignation, and a lot of self-talk to myself about digging my heels ... [Link]
RYLIE » IEP Take Two
In May we had Rylie's kindergarten IEP. All went well. We were in agreement with all the therapies and goals. They had this great program where basically Rylie would be in a special ed kindergarten class that integrated with the general kindergarten class. The classes were to be together pretty much the whole day except for reading and math. So, ... [Link]
RHETT'S JOURNEY » Just a Swingin'.......
How can you not just fall in love with this kid?
Make an on-line slide show at www.OneTrueMedia.com [Link]
All 4 My Gals » Amazing Amy
Just wanted to share another beautiful story from Ben's carepage. By the way for all those who are praying with me for him, his platelets jumped 35,000 overnight and they will be able to start the next round of chemo soon! YEA!
From Amy:Well, not much new on this end..but I'll leave you with this sweet Benny story. His friend Sophia ... [Link]
Big Blueberry Eyes » Mother Talk Book Tour - Nana Star
I've been able to review some books for myself via Mother Talk, but this time I had the opportunity to review a children's book with Kayla. We were sent Nana Star, Nana Star and the Moonman, Nana Star doll, and the Moonman.
Kayla was excited when the box arrived as I told her it was an early birthday present; she couldn't ... [Link]
Elliott's Nest » Happy 4th of July!!
We had a wonderful day yesterday at my Uncle Mike and Aunt Rita's house for our family picnic. The kids got to see Grammy, PapPap, Aunt Kelly, Uncle Glenn, Hannah, Luke, Glenn and Jacob, and spend the day with my aunts, uncles, and cousins. 
We met the newest member of our family, Miss Quinn. 
Brendan loved the Elmo sprinkler that Aunt Kelly ... [Link]
I Never Thought.... » King of the Jungle
This is what my child likes to do all day. Tiger wrasslin'.
The thing is about as big as he is, but he carries it around, either by the tail or by the ear. He lets out a few big roars and flings the tiger to the ground and bodyslams it. I'm not exaggerating when I say that this is how ...
[Link]Big Dawg Tales » Bring Back the Bambino!
Another article from the IBJ below. I spent most of my youth making Noble Roman's Pizza's in two of my fathers franchise stores. Noble Roman's had a great product and reputation even for being expensive for Pizza back then. That was the day of the Deep Dish and we could not make them fast enough. I can remember to this ... [Link]
Ten Squares, Three Squiggles » So you need a good book to read?
Just bought this book for the Tank's upcoming birthday as he enjoys history and politics: America According to Connor Gifford. Of course I'll be reading it first before I wrap it up - haha! Check out the website, read some excerpts and learn about the amazing author, Connor Gifford. He is a 26 year old living on Nantucket and ... [Link]
Kwisteena's Kwaziness » Vacation day 4, 5 and 6
Today went went to Walt Disney World! I love this park. So much stuff to do so little time! We went straight back to Thunder Mountain, a roller coaster that I actually like! We all enjoyed it, except Brittany LOL I lost my second pair of sunglasses on that ride..LOL sigh I will only buy cheap sunglasses from now on! ... [Link]
Kwisteena's Kwaziness » Vacation day 3
Today we went to Disney's Animal Kingdom. We had taken the girls here in 2003 but neither of them remembered it. It is a great park. More like a zoo with some awesome rides, but an awesome park. Only complaint was it was by FAR the most overcrowded park of them all! And people were terribly rude rushing you in ... [Link]
Praying For Parker » Skipping the 8’s!
When we saw Parker’s surgeon last week he was very pleased at how Parker’s teeny tiny designer hiney is healing.
So pleased in fact that he decided that we could skip the size 8 dilators and move right on up to the 9s. Two weeks with the 9’s and on to the 10’s we go for another two weeks.
Then back ...
[Link]Life With My Special Ks » The Princess Syndrome
Once upon a time, a little girl named Kennedy developed a case of what we like to call the Princess Syndrome. (You may recall last time when she developed a case of the birthday syndrome.)
When Sincess Kennedy woke up from her afternoon nap, she decided that she wanted to eat the royal macaroni and cheese. It didn't matter that we ... [Link]
Kwisteena's Kwaziness » Weigh In
It's been SOME time since last posting about my weight loss journey! No I haven't given up. These past two weeks have been crazy to say the least! Vacation, holidays, traveling up to the inlaws. It's been busy! So last week I went and weighed in on Wednesday, it had been almost 2 weeks since I had weighed in at ... [Link]
Mauzy's Musings » Dads Appreciating Down syndrome goes national
D.A.D.S. Now has a new website and includes links to other state D.A.D.S organizations.
CHECK IT OUT
See you in Boston, and don't forget to come to the D.A.D.S. presentation on Sunday. Big Dawg will be there presenting! [Link]
RAISING JOEY » Another book to add to my must buy list!
Wow, thank you to Nicole for posting the previous article on prenatal testing and about this book! I too, can’t wait to buy it!
We need to see America through Connor Gifford’s eyes
By LAURIE HIGGINS, CONTRIBUTING WRITER
July 06, 2008 6:00 AM
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... [Link]
RAISING JOEY » Another prenatal article
Targeting the womb, Down syndrome, disabilities
Last weekend at my favorite ice cream shop, I met an adorable 4-year-old boy named Sully. He had bright blue, inquisitive eyes, ...
[Link]Megan's got 47 » Megan's Friends
So today I walked into Megan's dance studio because Joe left a book there during Hell Week. Megan's teacher Ms. Sharon was there for summer classes and asked to talk to me in her office.
Ms. Sharon told me that when I came in with Megan to sign up for dance she doubted herself. She wasn't so sure she would be ... [Link]
Three Weddings » Picture Meme
Mamarazzi from Dandelion Wishes tagged me for this photo meme. It seemed pretty easy, but it was a little time consuming. It was also fun! There is only one rule: NO CLEANING BEFORE YOU TAKE THE PIC. Like friends that drop by my house uninvited, you get to see just how we live. I will never have the museum house ... [Link]
Dylan Update » A FUN 4th of July
Grandma and Grandpa Ba came up from Seattle for the 4th of July. It was great. They fed Mommy and Daddy steak (we just got hot-dogs...cheapskates! Just kidding) and then when Daddy went to work, we headed over to Cousin T's house. It was a good time except Mommy forgot the camera. Trust me. It was needed!
First, all the kids ... [Link]
Pinwheels » More from Katie
Here’s more of Katie and her family’s story, including an update on Stephanie, her 25-year-old daughter with Down syndrome:
Stephanie is thriving. She is transitioning into independent living. At the end of last year she received a voucher for government subsidized housing and has a very cute apartment about 2 miles from our house. Since her youngest sister was a senior ...
[Link]All 4 My Gals » Another Great Article!
One of the hard things about the eugenics movement is trying to get outsiders to understand our perspective. As parents of children and adults that have T21, we know the TRUTH! We are living with these family members and know first hand what other people are so scared of. In fact, many of us were once scared of the diagnosis ... [Link]
All 4 My Gals » I can't wait to buy this book!
We need to see America through Connor Gifford's eyes
By LAURIE HIGGINS
[Link]
2 Pirates and a Princess » Our July 4th Weekend
We went down to Sakonnett to my friend's summer cottage on Friday. The kids had a great time. The boys and H&A spent a lot of time and energy digging a "Hermit Crab Habitat", while Sofia loves jumping waves and digging in the sand. She also decided to CLEAN the railings, the flowers, the chairs and the cars.
... [Link]
Sunflower Stories » 4th Photos!
As, promised, a few photos of our weekend. We spent the morning of the 4th cleaning up the backyard & Doug spent the afternoon mowing, trimming and sweeping the yard. It looks awesome out there, too bad it's been 100 freaking degrees.
Doug needs to assemble and install the Trex railings to the upper deck posts and attach vinyl lattice to ... [Link]
Life According to Emma & Joe » slip-n-slide
Make video montages at www.OneTrueMedia.com [Link]
'til my head falls off » He was a good dog
Sleep well, Mosha. You were a very loved dog, even if you thought you were a people. We will miss you so very, very much. [Link]
Ramblings of the Bearded One » Rain didn’t completely stop play
.
The Galloway Children’s Fayre in Kirkcudbright* yesterday was not unexpectedly wet. The occasional light drizzle progressed to light drizzle interspersed with heavy drizzle, then heavy downpours, then torrential downpours.
However, by the time rain completely stopped play, Rogan had sold all his slices of cake, all but 2 of his scones, all but one piece of tablet, all but one square ... [Link]
Prince Vince Meets the World » On That Speech Thing
Take a look for yourself, the kid obviously wants to do the talking around here. He will pick up a cell phone (he now has his own Sony Ericsson - a former of mine) and he walks around talking into it. It is a life saver. For example this morning as I was trying to take a really quick shower, I heard him ...
[Link]momof12and loving it » I am finished with my third nine weeks of classes....
I finish history and an education class. I have hated the history because it seems that the professor likes to count my work either late or tell me I am wrong in the public forum. But I have learned from it and that is what counts.
With that behind me, I am now doing Diversity in the Classroom and Introduction to ... [Link]
Megan's got 47 » She is 3
She is 3 today! My Olivia Rose. My lover of life, my inquisiter, my 3rd leg!
I love her so much! Her beauty, her laughter! I love her more every minute!
Happy Birthday Sunshine!
She got Fancy Nancy from her Nana and Pop Pop which she LOVED...notice the pinky out and she got a new bike from Aunt Meme and Pop Pop Remmey... ... [Link]
Yeah, but Houdini didn't have these hips. » Cold Sores
I don't get cold sores. Neither do Paul, either of our girls, or anyone else in my family (mom, dad, sisters).
Apparently, this is somewhat rare, as most Americans do get cold sores.
It's not the end of the world, but cold sores aren't great things to get (see below).
It freaks me out (and frustrates me) when people with cold sores put ... [Link]
Gabi's World » Mystery Person Revealed!
Yep, I met them! I guess I cheated a little and made it sound like one person, but I met Patrick Henry Hughes and his dad, Patrick John Hughes. If this is the first you've heard of them, by all means you got to learn more about them. I have blogged about them many times before here, here, and here. ... [Link]
RHETT'S JOURNEY » 4th of July.....
This was by far the best part of our 4th of July. Rhett got to play on the playground for the first time this summer.....no tubing attached. He had a Blast...
I tried to get a good photo of all of the kids together, but Rhett would have none of it, he was off, and on his way to play. ... [Link]
All 4 My Gals » Reece's Rainbow Child of the Month
Andrey P
Boy, Born June 27, 2004
SIGNIFICANT RISK, PLEASE ADOPT ME SOON!!
What a precious, lively, glowing with happiness little boy! Andrey is facing institutionalization very soon....I can't bear the thought of that happening to him. He will bring the greatest joy to any family who adopts him! We so hope he will be saved by a committed family!
Andrey does have an ... [Link]
All 4 My Gals » Darrah is Growing Up
She started shaving last week! After much discussion between the two of us, and then talking to Joe, we allowed her to start this task of the American woman. I told her she wouldn't like it, that she didn't need to...etc....but her desire to do so won out. So even after a few cuts, she thinks her legs look much ... [Link]
All 4 My Gals » I want to change this....
This morning was the first time that Tarenne has EVER said those words to me.
She said them as she pointed to her precious little herniated belly button. The same one that she used to love pretending was a penis when she decided she wanted to be a boy. The same one we caught her standing over the toilet trying ... [Link]
All 4 My Gals » Oh Please....we're are NOT perfect!
We were talking to some friends from church today and they were telling me that they have a relative who is a frequent visitor of our blog. They too have a child that has T21 and so we share that bond, even though we have not met them....yet. Anyhow they were asking our friends if we were really as perfect ... [Link]
All 4 My Gals » Well I AM Famous!
I know THREE people watched my dance to Applebottom jeans and told me that it was really good!I overheard Marley saying this to Darrah with great confidence!
[Link]
All 4 My Gals » Horse Camp
Last week Tarenne and Darrah went to Horse Camp from 8:30 until 11:30 each day. They had a great time! Tarenne's horse's name is Shawn (Shawnee to her) and Darrah's was Sonny. They loved having the same horse all week as they really got to see their unique personalities.
Tarenne ended up doing almost the whole trail ride and stayed on ... [Link]
Ralph and the Crew » Church, grocery store, pool. My Sunday.
Today Ralph and I were introduced to a woman named Amy. She is the youngest of 9 children. She also has DS. I asked her about her family and where she lived and stuff. I was so pleased that her speech was easy to understand. Then she looked at Ralph and said, "You look like me!" I just had to ... [Link]
All 4 My Gals » Down Syndrome Babies Have Rights Too
This is a great article. I did not read all of the comments as I do not have time, and can pretty much tell you after 9 years of this journey what they will say. That said, if you do choose to read the comments please prepare yourself for some hardened, ignorant hearts to speak.
By Father Jonathan Morris
... [Link]
Super Duper Jack » Beach '08
Orange Beach
[Link]
Super Duper Jack » How Do I Love Thee...
What's it like having a child with Down syndrome?
I can only speak for myself. I can't even speak for Todd or his grandparents or aunts and uncle and cousins and other family members.
But for me, as his mother...I feel humbled.
There are days when I am overwhelmed. Jack is our only child and we went through a lot to get him here. ... [Link]
Super Duper Jack » Very Sad
We are new to the world of Dual Diagnosis.
Jackson was diagnosed with autism today. [Link]
DownBlogger » update on us
I just wanted to say...YAY! Jim has REALLY been here and with us for the last few weeks, not here wanting to be elsewhere, just HERE. We have been on vacation for a week, it will be awful hard to go back to work tomorrow. But this has been a good time for us, we didnt do a lot of ... [Link]
Reimer Reason » Making Romance
[Link]
Life With My Special Ks » Kennedy update - Sunday evening
Sorry for no update this morning, we've had a busy day. Kennedy slept REALLY well last night, our nurse kind of just let us be after her meds were taken so we both slept hard. She did still run a fever most of tonight and almost all day today. Her blood work and UA came back normal, but they're still ... [Link]
RAISING JOEY » Chillin at the beach
RAISING JOEY » Before & after
I snapped a couple pictures of Joey before and after his T&A. I felt so bad for him afterwards. Poor little guy felt so bad! He’s still not back to his old self but feeling better each day. Thankfully he is drinking now!
Chilling out reading a book waiting to be called to the OR.
“Mommy, I’m all done feeling ...
[Link]RAISING JOEY » New Blog!
Thanks to Maureen I have a new blog to read and wanted to share with everyone else. Go visit Dillion and his mom!
Having Fun At Home With Master Dillon!
[Link]Archie's Room » Paying Attention
I don’t think Archie slept at all this afternoon during naptime. I listened to him thump around in his room upstairs as I finished mopping the floor downstairs, and smiled to myself when I heard the thumping stop, assuming that he’d finally fallen asleep. But I realized I was wrong when I heard the thumping begin again, and decided then to ...
[Link]Big Blueberry Eyes » Grains of Gratitude
What a week we had! I'm grateful we were able to get away for that week as a family (even though it was so hot in AZ!) We were able to relax (for the most part!) and hang out, go to the pool, take it easy, no schedules, no appointments, and just be together. I'm grateful we had a ... [Link]
Pinwheels » A voice of experience
I received this email from Katie, mom to four, including an adult daughter with Down syndrome. She writes,
I have just finished reading your book Road Map to Holland. I am the parent of a 25-year-old daughter who has Down syndrome. My 18 and 19-year-old daughters purchased the book for me. (I also have a 27-year-old son). I not only thoroughly ...
[Link]Banana Migraine » Birthday Celebration
Because Delphine and Dominic have birthdays so close together, we try to have one double celebration with our family. Today was the big birthday party! We were missing some people because of illness and my Grandma decided to take a well deserved vacation in Michigan - but it was still a very lovely time. Our friends M and C brought ... [Link]
Life According to Emma & Joe » No title
I can't believe it but this big kid looks like he is ready to begin kindergarten in the fall. I think that Joe grew an inch in the last week.
[Link]
Big Dawg Tales » A challenge to the Indiana Economy!
If you have ever read my profile or my blog you will notice that I quite often fondly refer to the "Banks of the Buck Creek" or Crick as I say it. Well the Buck Creek runs thru my beloved Delaware County. I left the Muncie area in 1981 to attend college in Ohio and really never had the chance ... [Link]
The Flege Farm » ROLL CALL!
Calling all you Bloggers that are going to the National Down Syndrome Conference! Mayson and I are going so let me know If you are going so we can look for each other!!!!! I cant wait! [Link]
Gabi's World » Sunday Scripture
Now this is what the LORD Almighty says: "Give careful thought to your ways. You have planted much, but have harvested little. You eat, but never have enough. You drink, but never have your fill. You put on clothes, but are not warm. You earn wages, only to put them in a purse with holes in it." ~ Haggai 1:5-6 ... [Link]
All 4 My Gals » No title
A rock pile ceases being a rock pile the moment a single man contemplates it, bearing within him the image of a cathedral.
- Unknown Author [Link]
All 4 My Gals » Sign Generator
Made by My Cool Signs
This is really cool! Try it out. [Link]
Super Duper Jack » Beach '08
I'll post more tomorrow...it took over close to 2 hours to upload these. :)
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RYLIE » Bin and Bonz Bub
If you go back and read this post, you will see that Rylie was at one time calling my husband MOM, instead of dad or daddy. Not too long after that post she did finally start calling him Daddy. We were pretty thankful, that we no longer had to correct her.
So, my husband's name is Vince. Alot of people call ... [Link]
All 4 My Gals » Amazing Athlete
I think I have posted this before, but I was just perusing this site and wanted to share it again.
Albert Pujols has a daughter who has T21. He and his wife started a foundation to help others. Their lives and their light (faith) are inspiring!
Visit the Pujols Family Foundation and look around!
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All 4 My Gals » Marley's Last Day of School
Can you believe our little bit will be in 1st grade? She got the teacher that she wants and her best friend is in her class! She is ready!!! (yes these are older photos too)
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Life With My Special Ks » Kennedy update - Saturday night
Well, Kennedy has had an eventful day today. Frank and the kids came for lunch and PT was here so we got Kennedy up in a wheel chair and took her for a stroll. She took a long nap this afternoon and overshot her pain medicine time so I thought for sure she would wake up miserable, but she woke ... [Link]
All 4 My Gals » A Brush with Fame
When we went to visit Nash, Joe was able to play in the DADS golf event. While there we met this year's celebrity guest Brad Hennefer and Tarenne had her picture made with him....not once but twice. Okay, so did the other girls as well, but I'm so behind I have to post what's most pertinent. :)
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I Never Thought.... » Typical.
So, we pretty much gave up on celebrating the 4th in lieu of kicking butt on FPH. (Although, really, what is more American than spending every weekend and all your money at Home Depot on a ridiculous home improvement project that is taking five thousand times longer than it should?) My dad was in town to help, and he and ... [Link]
Banana Migraine » Festivities
Here are a few pictures from our day yesterday. We started the morning by heading to Grandma's house and joining in their neighborhood parade.
It was actually a bit chilly, so we decided to go inside and just hang out. My mom made us crepes and cookies. Dominic and Vince got in the hot tub, and Delphine played ... [Link]
SHAMPTONS » Ecstatic!
Hannah started signing and moved on to single words really well - years ago. Then as we wanted her to move onto two word utterances she seemed to slow. I ahve been focusing on getting ehr to say more than one word - and she does - but mostly at home and often with a prompt. She ahs been getting ... [Link]
Elliot’s Expeditions » Quiet.
I have learned to listen through silence. I am good at deducing gestures: the flutter of an eyelash, the wave of a hand.
I have become an expert at interpreting cries: high pitched, low pitched, and here we sit---somewhere lost between the lines. I will remain between the lines with Elliot until he can speak, perhaps just a word or two. ... [Link]
Dream Big » Boys
You would think I'd be used to boys by now. I've been married for 6 years now, and we've been raising a son for FIVE years! He never ceases to amaze me though. My mother, the mother of four girls, was over visiting. A nice conversation really, some talk of gardens and Mary Kay, the normal stuff. Out of nowhere, ... [Link]
Big Dawg Tales » The leader of the Business world in Indiana...oh someone save us!
After 25 years in the Indiana business world I have finally arrived at the belief that there is a self appointed King in Indiana and his name is Kevin Brenigar. In the latest issue of the IBJ "Chamber suing Chamber" we see the latest in King Kevin's power grabs. He now owns the rights to anything Chamber of Commerce. Beware ... [Link]
Praying For Parker » Up And…….
well I was going to title this post Up And Running.
But I have to be satisfied with just up for now.
I can live with that. Cause this kid is pulling up on every and anything these days. And if there is one thing I have learned from being Mom to this amazing spirit is ...
[Link]Life With My Special Ks » Q&A #11 - Surgery questions
Have the kids been able to come see her yet? What do they think of all of this?
The kids came up yesterday for the first time. Kameron said the other day that the halo looks like a hypnotizing helmet! haha He had a lot of questions about everything from her drain to the halo to the blood pressure machine. He ... [Link]
Reimer Reason » No Words
I forget what you call it when someone thinks you are taking a picture...but you're actually taking a video. I remember seeing the word on Urban Dictionary, but now I can't find it. Anyone? [Link]
Ten Squares, Three Squiggles » The latest bureaucratic conundrum
Caden was recently denied services by our Department of MH/MR (Mental Health/Mental Retardation). They said he isn't eligible. As in, he did so well on their testing that he does not qualify as having mental retardation. This does not impact the therapies he receives through the school district or his eligibility for Medicaid which are the most helpful tools to ... [Link]
DownBlogger » Godspeed, little man
Make video montages at www.OneTrueMedia.com 
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All 4 My Gals » Fun Friends
These were taken about a month ago, but I'm so far behind, and I wanted to share them. I just love Darrah's friend Rachel...as most of you already know. :)
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Garden of Eagan » One last post before I go...SEE YA!!!!
By the way, this picture was difficult to take by MYSELF!
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Elliot’s Expeditions » Happy Day!
We had a fantastic day yesterday. Elliot’s Godmother invited us over for a cul-de-sac block party of sorts. They had everything from an underground pool, to piñatas for the kids, a margarita machine and loads of BBQ. Elliot was finally able to experience his first swim and he was ... [Link]
Chanelle and Tristan » Art class
Aww how cute your pets are watching you colour (Mom receives dirty look) Why do those two get to sit closer ("They are having their art class DUH!") LOL Excuse Moi I did not know!
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Life With My Special Ks » Kennedy update - Saturday morning
Kennedy had a good night, her fever broke again and she slept well except for when her nurse had to come and turn her. She's a trooper though and always goes right back to sleep. They are doing a good job of keeping her oral pain meds coming ahead of the pain, so I think that contributed to her restful ... [Link]
The Flege Farm » Happy 4th!
We had a great 4th of July today! We always go to the annual pancake breakfast put on by our local fire department. It was yummy! After that we swam in our pool and then took naps...ohh it was so nice to take a nap!
We met up at my brothers to grill for supper and watch the 4th of July ... [Link]
Prince Vince Meets the World » Mastering All Types of Skills
We do wash him every night… this was after dinner and before bath time…
This little kid had his 2-year check up yesterday and it went well. Vince even showed off some advanced signing and the dr was mighty impressed. He is also back on his curve for weight, but he is still a little short (we use the ...
[Link]Ralph and the Crew » Ralphie's got talent!
We are sitting here tonight watching the National 4th of July celebration from Washington D.C. on PBS. When the opera singer opened the show by singing the national anthem Ralphie grabbed his xylophone and started tinking. It sounded pretty good! Now Huey Lewis is on singing "The Heart of Rock and Roll." Ralph is still playing. This kid LOVES music! ... [Link]
EmmaSage » Happy 4th of July
This was taken two years ago......but I forgot my camera today [and it was too bad, because little Miss was in her element, as she loves parties and is the Belle of the Ball]
4th of July is my most favorite of days, as I cherish the fact that we live in a country that values freedom and human rights. ... [Link]
Kwisteena's Kwaziness » A story to make us think...
A STORY TO MAKE US THINK
Two men, both seriously ill, occupied the same hospital room. One man was
allowed to sit up in his bed for an hour each afternoon to help drain the
fluid from his lungs. His bed was next to the room's only window.
The other man had to spend all his time flat on his back. The men talked ... [Link]
Dream Big » Holiday Pictures
I just couldn't resist posting this little bit of cuteness before we hit the sack. Mommy made this special little red dress for the princess of the house. She didn't have any blue in it, so I just put a blue bow in her hair. (Did you hear that? a bow in her HAIR!) It even stayed in most of ... [Link]
Elliott's Nest » Eyes
Aidan's Beautiful Eyes