State and Local Links
Web sites of State and Local organizations, listed alphabetically by State.
State/Local
- Alabama: Bringing Up Down Syndrome
B.U.D.S. is a non-profit organization that was started in 2003 that benefits anyone in North Alabama that is impacted by Down syndrome. - Alabama: Down Syndrome Alabama
- Alaska: Alaska Chapter of the Down Syndrome Congress
- Arizona: Crecer Con Amor
(in Spanish) All-volunteer, Latin support group from Tucson, by and for Parents of Special Needs Children - Arizona: Down Syndrome Connection of Tuscon
- Arizona: Sharing Down Syndrome Arizona
Programs throughout Arizona in English and Spanish - Arizona: Southern Arizona Network for Down Syndrome
- Arkansas: Arkansas Down Syndrome Association
- California: Down Syndrome Association of Los Angeles (DSALA)
- California: Down Syndrome Association of Orange County
- California: Down Syndrome Association of San Diego
- California: Down Syndrome Connection of the Bay Area
- California: Down Syndrome Information Alliance
A community organization dedicated to providing resources and support to families, therapists, physicians, educators and others affected by Down syndrome in Northern California. - California: Parents Helping Parents
PHP is a parent-directed community-based organization in Santa Clara whose mission is to help children and adults with special needs receive the support and services they need to reach their full potential. - California:Sonoma County Down Syndrome Support
- Colorado: Mile High Down Syndrome Association
(in English and Spanish) Mile High Down Syndrome Association, Inc. (MHDSA) is a non-profit organization which serves families of children and adults with Down syndrome, and interested professionals in the Mountain States region. - Colorado: The Colorado Springs Down Syndrome Association
- Connecticut: Connecticut Down Syndrome Congress
- Delaware: Down Syndrome Association of Delaware
- Florida: Broward Gold Coast Down Syndrome Organization
- Florida: Down Syndrome Association of Central Florida
- Florida: Down Syndrome Association of Jacksonville
- Florida: Down Syndrome Association of Tallahassee
- Florida: F.R.I.E.N.D.S. (Families Raising, Inspiring, Educating, & Nurturing; Down syndrome
- Florida: Families Exploring Down Syndrome
- Florida: Gold Coast Down Syndrome Association
serving Palm Beach county - Florida: Manasota BUDS (Bringing up Down syndrome)
- Florida: Northern Central Florida Playgroup
Email list through Yahoo! Groups - Florida: P.O.D.S. Angel Support Foundation
Support group that also does outreach to new parents - Georgia: Down Syndrome Association of Atlanta
- Hawaii: Hawaii Down Syndrome Congress
- Idaho: Treasure Valley Down Syndrome Association
- Illinois: Central Illinois Down Syndrome Organization
- Illinois: Gigi’s Playhouse
Gigi’s Playhouse is a Down syndrome awareness center with four locations. - Illinois: Heart of Illinois Down Syndrome Association
- Illinois: Plainfield Area Support Group
- Illinois: Riverbend Down Syndrome Parent Support Group
Support and information to parents of children with Down syndrome in Southwestern Illinois - Illinois: Riverbend Down Syndrome Parent Support Group
- Illinois: Ups for DOWNs
Chicago/Metro area - Indiana: Columbus Area Down Syndrome Support Group
- Indiana: Dad’s Appreciating Down Syndrome
- Indiana: Dad’s Appreciating Down Syndrome
- Indiana: Down Syndrome Family Support and Advocacy Group
Michiana area, Northern Indiana and Southern Michigan - Indiana: Down Syndrome Support Association of NorthEast Indiana
- Indiana: Down Syndrome Support Association of Southern Indiana
- Indiana: Elkhart County Down Syndrome Support Group
- Indiana: Indiana DS Foundation
- Iowa: Hawkeye Area Down Syndrome Association Inc.
- Iowa: Iowa Respite & Crisis Care Coalition
Whether you are caring for a loved one with special needs and would like rest, if you need training, or if you are currently in a crisis and need time away from your children, we can help! - Iowa: Up with Down Family Support Group
Based in DesMoines - Kansas: Down Syndrome Society of Wichita
- Kentucky: Down Syndrome Association of Central Kentucky
- Kentucky: Down Syndrome of Louisville
- Kentucky: Down Syndrome Support Group of South Central Kentucky
- Louisiana: Down Syndrome Association of Acadiana
- Louisiana: The Down Syndrome Association of Greater New Orleans
- Louisiana: Up with Downs
Shreveport-Bossier area - Maine: Southern Maine Down Syndrome Family Network
- Maryland: Angels Forever Up
Raising awareness of Down syndrome in southern Maryland - Maryland: Anne Arundel Down Syndrome Connection
- Maryland: Chesapeake Down Syndrome Parent Group, Inc.
- Maryland: Down Syndrome Network of Montgomery County
- Maryland: Family Resource and Information Network for DS.
Frederick County - Massachusetts: Down Syndrome Resource Group of Western Massachusetts
- Massachusetts: Massachusetts Down Syndrome Congress
- Michigan: Capital Area Down Syndrome Association
- Michigan: Down Syndrome Association of West Michigan
- Michigan: Families Exploring Down Syndrome
Detroit area - Michigan: Michigan Down Syndrome Group
Yahoo! Health Group (email/message list) - Minnesota: Down Syndrome Association of Minnesota
- Mississippi: Central Mississippi Down Syndrome Society
- Missouri: Down Syndrome Association of Greater St. Louis
- Missouri: Down Syndrome Association of Mid Missouri
- Missouri: Down Syndrome Guild of Greater Kansas City
- Montana: Missoula Buddy Walk
- Nevada: Down Syndrome Association of Southern Nevada
- New England: Northern New England Down Syndrome Congress
- New Jersey: Down Syndrome Association of Central New Jersey
- New Jersey: Family Resource Associates, Inc.
- New Jersey: Knowledge and Information about Individuals with Down syndrome
Non-profit based in Southern New Jersey. Our purpose of forming KIIDS was to help support new parents of babies with Down syndrome since we all had such positive experiences in sharing our stories with one another. - New Jersey: Network 21
Network 21 is a parent-run network for families with Down syndrome in Central New Jersey. - New Mexico: ARCA
Dedicated to providing premier residential and vocational services to people with developmental disabilities - New York: Aim High
Down Syndrome Aim High Resource Center in Albany, New York - New York: Association for Children with Down Syndrome
Long Island’s leading service provider for children and adults with Down syndrome - North Carolina: Piedmont Down Syndrome Support Network
- North Carolina: The Down Syndrome Association of Charlotte
- North Carolina: Triangle Down Syndrome Network
Located in central North Carolina, serving families in Wake, Durham and Orange and surrounding counties. - Ohio: Down Syndrome Association of Central Ohio
- Ohio: Down Syndrome Association of Greater Cincinnati
- Ohio: Down Syndrome Association of Greater Toledo
- Ohio: Miami Valley Down Syndrome Association
- Ohio: The Upside of Downs of Greater Cleveland
- Oklahoma: Down Syndrome Association of Central Oklahoma
- Oklahoma: Down Syndrome Association of Tulsa
- Oregon: Down Syndrome Association of Southern Oregon
- Oregon: Northwest Down Syndrome Association
- Oregon: Williamette Valley Down Syndrome Association
- Pennsylvania: Bucks County Down Syndrome Interest Group
- Pennsylvania: Centre County Down Syndrome Society
- Pennsylvania: Chester County Down Syndrome Interest Group
- Pennsylvania: Down Syndrome Group of Western Pennsylvania
- Pennsylvania: Down Syndrome Support Group of the Susquehanna Valley
- Pennsylvania: Eastern Pennsylvania Down Syndrome Center
- Pennsylvania: Friends of Trisomy 21 Center, Inc.
The Trisomy 21 Center is at Children’s Hospital of Philadelphia - Pennsylvania: Montgomery County of PA, Down Syndrome Interest Group
- Pennsylvania: York Area Down Syndrome Association
- Rhode Island: Down Syndrome Society of Rhode Island
- South Carolina: Down Syndrome Association of the Lowcounty
- South Carolina: Down Syndrome Family Alliance of Greenville
- South Carolina: Grand Strand Down Syndrome Society
- Tennessee: Down Syndrome Association of Memphis and Mid-South
- Tennessee: Down Syndrome Association of Middle Tennessee
- Tennessee: Friends; Friends Reaching Inspiring and Educating Neighbors about Down Syndrome
Northeast Tennessee - Texas: Down Syndrome Association of Central Texas
- Texas: Down Syndrome Association of Houston
- Texas: Down Syndrome Association of San Antonio
- Texas: Down Syndrome Guild of Dallas
- Texas: Down Syndrome Partnership of Tarrant County
- Texas: Down Syndrome Support Group of Bryan/College Station (B/CS)
- Texas: East Texas Down Syndrome Group
(in English and Spanish) - Texas: Panhandle Down Syndrome Guild
- Utah: Utah Down Syndrome Foundation
- Virginia: Down Syndrome Association of Greater Richmond
- Virginia: Down Syndrome Association of Hampton Roads
- Virginia: Down Syndrome Association of Northern Virginia
- Virginia: Down Syndrome Association of Roanoke
serving Southwest Virginia - Virginia: Down Syndrome Association of Virginia Peninsula
- Virginia: Virginia Dads Appreciating Down Syndrome
meetings in Richmond, Virginia - Washington: Parent to Parent King County
- Washington: Upside
an informal society of individuals, parents, and friends involved with the world of Down Syndrome - West Virginia: Down Syndrome Association of Fredricksburg
- West Virginia: Down Syndrome Network of West Virginia
- Wisconsin: Down Syndrome Association of Wisconsin
- Wisconsin: Down to Earth
- Wisconsin: Madison Area Down Syndrome Society





